Showing posts with label public advocacy. Show all posts
Showing posts with label public advocacy. Show all posts

Friday, May 21, 2010

State news: Michigan to hold public meetings on autism insurance; Monday May 24, 2010 meeting in Ysilanti

 AIM Michigan and Autism Votes announce that there will be a legislative task force meeting on autism insurance reform hosted by Michigan Senators Randy Richardville and Tupac Hunter. Although Michigan's House in June 2009 passed two autism insurance bills,
HB 4476 : insurance; health care corporations; coverage for certain treatments related to autism; provide for. Amends 1980 PA 350 (MCL 550.1101 - 550.1704) by adding sec. 416e.
and
HB 4183: Insurance; health; coverage for certain treatments related to autism; provide for. Amends 1956 PA 218 (MCL 500.100 - 500.8302) by adding sec. 3406s.
 
that proposed to cover ABA and other evidenced treatments, the bills have subsequently stalled in the Senate's Economic Development and Regulatory Reform Committee. Autism Votes states that these meetings represent the Michigan Senate's effort to determine what would best meet the needs of Michigan's families and children impacted by autism spectrum disorder.
Monday, May 24, 2010, 2:30-4:30 pm. EDT
Autism Collaborative Center
Eastern Michigan University
1055 Cornell Road, Fletcher School Building, Ypsilanti, Michigan
Among those stated to be speaking will be
  • Lorri Unumb, Senior Policy Advisor for Autism Speaks
  • Catherine Lord, Ph.D., Director of the University of Michigan Autism & Communication Disorders Centers;
  • Pamela Lemerand, Ph.D, Project Director for EMU's Autism Collaborative Center;
  • Eileen Weiser, former State Board of Education member and Civic Leader,
  • Brooke Ingersoll, Ph. D, Michigan State University Autism Laboratory.

The second in the series of task force meetings has been set for Friday, June 4, from 12:00 - 2:00 pm EDT at the Children's Hospital of Michigan, Detroit Medical Center, Detroit, MI.


For further reading
Autism Votes Michigan

Autism Insurance Michigan Blog

Draft Position Statement on Autism Insurance
Behavior Analysis Association of Michigan(BAAM)

© 2010 Regina G. Claypool-Frey
Disclaimer: This blog publishes news and announcements only as a service to interested persons, the posts are the responsibility of the individual author, and unless otherwise noted do not constitute nor claim to represent the official position of ABA International, its officers or associated entities. This blog makes no representation as to the accuracy of the report and readers are strongly encouraged to consult and reference the primary sources noted.

Tuesday, May 18, 2010

U.S. Research Policy: HHS Secretary Kathleen Sebelius appoints five new public members to the Interagency Autism Coordinating Committee (IACC)

At the April 30, 2010 full meeting of the Interagency Autism Coordinating Committee (IACC) - the Federal advisory committee mandated by The Combating Autism Act (CAA) of 2006 (P.L. 109-416 – ) to coordinate research activities within the U.S. Department of Health and Human Services - and the Office of Autism Research Coordination (OARC), five new public members appointed by Secretary of Health and Human Services, Kathleen Sebelius were added to the Committee.
"The new members will bring additional points of view and expertise to the IACC...'By adding new voices to the IACC and expanding the number of organizations represented on the committee, we hope to broaden our perspectives and increase coordination efforts,' said Dr. Thomas Insel, IACC Chairman and director of the National Institute of Mental Health, part of the National Institutes of Health (NIH)."
New Members of the Interagency Autism Coordinating Committee:

Geraldine Dawson, Ph.D.
Chief Science Officer, Autism Speaks
Dr. Dawson is the Chief Science Officer for Autism Speaks, working with the scientific community and stakeholders to shape and expand the foundation's scientific vision. She also is a licensed clinical psychologist with a research focus on early detection and intervention, early patterns of brain dysfunction and the identification of biological markers for autism genetic studies. Dr. Dawson also serves as Research Professor of Psychiatry at the University of North Carolina at Chapel Hill, Adjunct Professor of Psychiatry at Columbia University and Professor Emeritus of Psychology at University of Washington.
Gerald D. Fischbach, M.D.
Scientific Director, Simons Foundation
Dr. Fischbach is the Scientific Director for the Simons Foundation, where he oversees the Autism Research Initiative. He has spent his career as a neuroscientist studying the formation and maintenance of synapses, the junctions between nerve cells which allow signals to be transmitted. Before joining the Simons Foundation, Dr. Fischbach served as the Director of the National Institute of Neurological Disorders and Stroke (NINDS) from 1998 to 2001 and as the Executive Vice President of Columbia University Medical Center and Dean of the faculties of medicine from 2001 to 2006.
Ari Ne'eman
Founding President of the Autistic Self-Advocacy Network (ASAN)
Mr. Ari Ne'eman is the Founding President of the Autistic Self Advocacy Network, where he works to increase the representation of autistic people in public policy discussions. He is an adult on the autism spectrum and a leading advocate in the neurodiversity movement. Mr. Ne'eman has served on the New Jersey Adults with Autism Task Force and the New Jersey Special Education Review Commission, where he authored a minority report advocating legislative action against the use of aversives, restraint and seclusion. He is a board member of TASH, an advocacy group for people with disabilities, and is involved with the Maryland Coalition for Inclusive Education.
Denise D. Resnik
Co-founder of the Southwest Autism Research & Resource Center; President of Denise Resnik & Associates
Denise Resnik is the co-founder and Board Development Chair of the Southwest Autism Research & Resource Center (SARRC). She is the mother of an 18-year-old son with autism. Ms. Resnik serves on the Autism Speaks Family Services Committee and Advancing Futures for Adults with Autism (AFAA) Steering Committee. She participated in the 2006 NIMH Autism Matrix Review and the IACC Scientific Workshops to develop the IACC Strategic Plan and subsequent updates.
Marjorie Solomon, Ph.D.
Assistant Professor of Clinical Psychiatry at the University of California, Davis
Dr. Marjorie Solomon is an Assistant Professor of Clinical Psychiatry in the Department of Psychiatry and Behavioral Sciences at the University of California, Davis. She serves on the faculty of the Medical Investigation of Neurological Disorders (MIND) Institute and the Autism Research Training Program, where she conducts research on a social skills training intervention for high-functioning children with ASD, incorporating parents and siblings in the research. In addition to her clinical research work, Dr. Solomon studies cognition and learning in high-functioning individuals with ASD.
These five new members join those Public members already on the IACC,

Lee Grossman
President and CEO
Autism Society
Bethesda, MD

Yvette M. Janvier, M.D.
Medical Director
Children's Specialized Hospital
Toms River, NJ

Christine M. McKee, J.D.
Rockville, MD

Lyn Redwood, R.N., M.S.N.
Co-Founder and Vice President
Coalition for SafeMinds
Tyrone, GA

Stephen M. Shore, Ed.D.
Executive Director
Autism Spectrum Consulting
Newton, MA

Alison Tepper Singer, M.B.A.
President
Autism Science Foundation
New York, NY

and the Federal Members who represent different agencies.

For further information

HHS Secretary Sebelius Appoints Five New Members to the Interagency Autism Coordinating Committee (IACC)
Friday, April 30, 2010

Interagency Autism Coordinating Committee Member Roster

Past post
Thursday, April 29, 2010
April 30, 2010 Meeting of the Full Interagency Autism Coordinating Committee (IACC); Live videocast available

Saturday, February 6, 2010
U.S. Research Policy: Interagency Autism Coordinating Committee releases the 2010 IACC Strategic Plan for Autism Spectrum Disorder Research

© 2010 Regina G. Claypool-Frey
Disclaimer: This blog publishes news and announcements only as a service to interested persons, the posts are the responsibility of the individual author, and unless otherwise noted do not constitute nor claim to represent the official position of ABA International, its officers or associated entities. This blog makes no representation as to the accuracy of the report and readers are strongly encouraged to consult and reference the primary sources noted.

Monday, May 17, 2010

State legislation: Delaware - May 21, 2010, SB 204 Info and Advocacy Session

Autism Votes Delaware and the Autism Delaware Facebook group have announced an info and letter writing opportunity to get up to speed on the legislative bill
SB 204, AN ACT TO AMEND TITLE 18 OF THE DELAWARE CODE RELATING TO AUTISM SPECTRUM DISORDERS COVERAGE. 
currently in the Senate Finance Committee. SB 204 defines applied behavior analysis, includes it for coverage under the "habilitative or rehabilitative care" category, and includes among those denoted as an "Autism services provider", "practitioners with the national certification of board-certified behavioral analyst",or any person, entity, or group meeting the standards set by the Department of Health and Social Services.

Meeting information:
Date: Friday, May 21, 2010
Time: 1:00pm - 6:00pm (hourly sessions)
Location: Autism Delaware Newark Office
Street: 924 Old Harmony Road, Suite 201
City/Town: Newark, DE
View Map
RSVP at Facebook and/or to Kim Siegel, kim.siegel@delautism.org
Attendees will able to learn more about the latest information on SB 204 and write letters to legislators. Talking points, contact information, sample letters, paper, envelopes, and refreshments will be provided.

Every hour there will be a review of the legislation and what it will (and will not) accomplish and answer questions before beginning letter writing. The first hourly session starts at 1:00pm, sessions will continue through the afternoon, with the last session beginning at 5:00pm and ending at 6:00pm.

Again, please RSVP at Facebook and/or to Kim Siegel, kim.siegel@delautism.org to sign up for a time slot so that organizers can ensure that there will be enough volunteers, supplies, and snacks during the session.

For more information
Autism Votes Delaware

Autism Delaware Facebook group

Autism Delaware

Past post
Friday, March 19, 2010
State legislation: Delaware - Senate Bill 204 autism insurance bill would provide reimbursement for ABA

© 2010 Regina G. Claypool-Frey
Disclaimer: This blog publishes news and announcements only as a service to interested persons, the posts are the responsibility of the individual author, and unless otherwise noted do not constitute nor claim to represent the official position of ABA International, its officers or associated entities. This blog makes no representation as to the accuracy of the report and readers are strongly encouraged to consult and reference the primary sources noted.

Saturday, May 8, 2010

State Advocacy: North Carolina - Advocacy day planned for May 10, 2010 meeting of the Joint Study Commission on Autism Spectrum Disorder and Public Safety

On Monday, May 10, 2010 there will be a meeting of the Joint Study Commission on Autism Spectrum Disorder and Public Safety at 1:00 p.m. in Room 643 of the Legislative Office Building.

News reports are that North Carolina families will be converging on the capitol on Monday to meet with legislators and weigh in to Committee on the need for helath care reform and financial relief.

The Autism Society of North Carolina Blog gives instructions for advocates and stakeholders who wish to attend this meeting at the Capitol.

Video: "Parents fight for autism insurance reform" (May be an ad before story plays)





For more information
Monday, May 10, 2010: THE PLAN
Posted on May 5, 2010 by momof3au
Autism Society of North Carolina Blog


Joint Study Committee on Autism Spectrum Disorder and Public Safety (2009)
(Member list and to sign up for meeting notices by email)

Triad Parents Fight For Autism Insurance Reform
Chelsi Zash    Created:  5/7/2010 12:01:11 PM  Updated: 5/7/2010 12:31:32 PM

Autism Votes North Carolina

North Carolina General Assembly

Past post
Sunday, March 7, 2010
State advocacy news - North Carolina studies autism insurance coverage including applied behavior analysis

© 2010 Regina G. Claypool-Frey
Disclaimer: This blog publishes news and announcements only as a service to interested persons, the posts are the responsibility of the individual author, and unless otherwise noted do not constitute nor claim to represent the official position of ABA International, its officers or associated entities. This blog makes no representation as to the accuracy of the report and readers are strongly encouraged to consult and reference the primary sources noted.

Wednesday, March 24, 2010

State Advocacy: Ohio - April 14, 2010 Autism Awareness Rally and Reception Planned at Ohio Statehouse

Two events sponsored by Autism Speaks and the Autism Society of Ohio are scheduled for Wednesday, April 14, 2010 at the Ohio Statehouse:
A daytime rally and meetings with State Senators to raise autism awareness and to advocate for autism related bills in the Ohio legislature, and an evening reception for advocates and constituents to meet with legislators and other decision makers to discuss autism, and autism supports and services in Ohio districts.

Autism Awareness Rally 11:00AM - 12:00 Noon
The rally will be held April 14, 2010, 11:00am to 12:00 noon on the south lawn of the Ohio Statehouse
 Parking is available under the Statehouse or flat lots by the Statehouse. Informational handouts about HB 8 and SB 220/HB 399 will be available for all advocates and media.

Speakers will be addressing the bills,
  • HB 8: A BILL To amend section 1739.05 and to enact sections 1751.68 and 3923.84 of the Revised Code to prohibit health insurers from excluding coverage for specified services for individuals diagnosed with an autism spectrum disorder. 
    • Passed in the Ohio House 12/8/2009
    • Currently in the Senate Insurance, Commerce & Labor Committee.
  • SB 220 / HB 399: To amend section 955.011 of the Revised Code to revise the definition of "mobility impaired person" to include a person who is diagnosed with autism for purposes of the statutes governing assistance dogs. 
    • SB 220 currently in the Senate Health, Human Services, & Aging Committee & 
    • HB 399 is currently in the House Health Committee
and updating participants on other issues related to autism.

Attendees are requested to bring signs (without a pole) showing support for HB 8, saying thanks for passing HB 8 and listing his/her State Representative. It is also suggested that attendees call and set up an appointment with his/her state Senator to discuss HB 8 and SB 220/HB 399.

Announced speakers are,
There will be kids' activities, such as face painting, thanks to Oakstone Academy.  Tables will be set up from Autism providers and advocacy groups.

Autism Awareness Legislative Reception: 5:00PM – 7:00PM
In the evening, an Autism Awareness Legislative Reception will be held in the Atrium of the Statehouse. Legislators have been invited to meet with constituents from their districts to learn more about autism and autism supports and services in their district.  Department Directors, members of the Interagency Workgroup on Autism and the Governor’s office have also been invited.  Appetizers and refreshments will be provided by Autism Society of Ohio. 

For more information:
CONTACTS: 
RALLY: Doug Krinsky (Parent of a child with Autism), CAC, Autism Speaks,
(614) 554-0802, yogi1125@aol.com
RECEPTION: Barbara Yavorcik, Executive Director, Autism Society of Ohio, (614) 537-4079, askASO@autismohio.org, www.autismohio.org

© 2010 Regina G. Claypool-Frey
Disclaimer: This blog publishes news and announcements only as a service to interested persons, the posts are the responsibility of the individual author, and unless otherwise noted do not constitute nor claim to represent the official position of ABA International, its officers or associated entities. This blog makes no representation as to the accuracy of the report and readers are strongly encouraged to consult and reference the primary sources noted.
 
550 W. Centre Ave., Portage MI 49024-5364
Phone: (269) 492-9310 | Fax: (269) 492-9316 | E-mail: mail@abainternational.org